{"id":8369,"date":"2022-06-10T04:16:58","date_gmt":"2022-06-10T04:16:58","guid":{"rendered":"https:\/\/www.booksofall.com\/?post_type=product&#038;p=8369"},"modified":"2022-06-10T04:16:58","modified_gmt":"2022-06-10T04:16:58","slug":"if-a-medicine-is-too-expensive-should-a-hospital-make-its-own","status":"publish","type":"product","link":"https:\/\/www.booksofall.com\/pt\/if-a-medicine-is-too-expensive-should-a-hospital-make-its-own\/","title":{"rendered":"If a medicine is too expensive, should a hospital make its own?"},"content":{"rendered":"<h4 id=\"standfirst\" class=\"article__standfirst\">When\u00a0the price of an essential medicine rose to an unacceptable level, there was only one thing for pharmacist Marleen Kemper to do \u2013 start making it herself.<\/h4>\n<aside class=\"article__aside\">\n<div class=\"article__aside__section article__share-buttons\" role=\"group\">\n<div class=\"paragraph paragraph--text\">\n<p>When Marleen Kemper was a child, she watched two of her primary-school classmates get ill. One had a brain tumour, and the other contracted an infection in his gut. Both of them died. Kemper was around ten at the time, and knew that she didn\u2019t want to see another friend perish. She told her parents she wanted to do something that would prevent others dying. She wanted to be a doctor.<\/p>\n<p>But training is hypercompetitive in the Netherlands, where Kemper was growing up. She didn\u2019t quite have the grades. She liked chemistry, so chose a career in pharmacy instead. She studied for six years, and did a residency for another four. Today, she\u2019s a highly respected hospital pharmacist based at Amsterdam UMC\u2019s Academic Medical Center, a cavernous building crafted out of concrete on the south-east fringe of the Dutch capital.<\/p>\n<\/div>\n<div class=\"paragraph paragraph--text\">\n<p>To understand what happened next, you have to understand several things about Kemper. Two date back to her childhood. One was those early experiences of losing friends to illness, which ensured she\u2019ll do everything she can to make sick people better.<\/p>\n<p>The second is that, though she\u2019s highly accomplished, Kemper is self-admittedly hard-headed, and has always had a rebellious streak. She once dyed her hair black to stand out from the crowd. Sometimes she likes to shock people.<\/p>\n<p>Which leads into the third, more recent trait: a steely determination to do right by her patients, whatever the cost. And the cost can be great. In 2017, when the price of a drug to treat a rare genetic disorder skyrocketed, Kemper wasn\u2019t happy. The result was a dispute that\u2019s still going on today and has spread beyond the four walls of the UMC hospital. It\u2019s spread beyond the city of Amsterdam. And it\u2019s even spread beyond the borders of the Netherlands.<\/p>\n<h4>Reference:<\/h4>\n<ul>\n<li>The US National Library of Medicine\u2019s overview of\u00a0<a href=\"https:\/\/ghr.nlm.nih.gov\/condition\/cerebrotendinous-xanthomatosis\">CTX<\/a>.<\/li>\n<li>The European Medicines Agency\u2019s overview of\u00a0<a href=\"https:\/\/www.ema.europa.eu\/en\/medicines\/human\/EPAR\/chenodeoxycholic-acid-leadiant-previously-known-chenodeoxycholic-acid-sigma-tau\">CDCA Leadiant<\/a>\u00a0and\u00a0<a href=\"https:\/\/www.ema.europa.eu\/en\/human-regulatory\/overview\/orphan-designation-overview\">orphan drug designation<\/a>.<\/li>\n<li>Amsterdam UMC\u2019s self-compounding has been covered in the\u00a0<em><a href=\"https:\/\/www.bmj.com\/content\/361\/bmj.k2103\">BMJ<\/a><\/em>\u00a0and the\u00a0<em><a href=\"https:\/\/www.ft.com\/content\/e394d54e-ae16-11e8-8d14-6f049d06439c\">FT<\/a><\/em>.<\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/aside>\n","protected":false},"excerpt":{"rendered":"<p><iframe style=\"width: 100%; height: 750px; border: none;\" src=\"https:\/\/online.visual-paradigm.com\/share\/book\/if-a-medicine-is-too-expensive-should-a-hospital-make-its-own-zdsj1f0bd?enforceShowPromotionBar=true\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n","protected":false},"featured_media":8372,"template":"","meta":{"_yoast_wpseo_title":"","_yoast_wpseo_metadesc":"Intuitive online diagram maker - Learn how to add line breaks into shapes created using Visual Paradigm's free online diagram editor."},"product_brand":[],"product_cat":[15,181],"product_tag":[],"class_list":{"0":"post-8369","1":"product","2":"type-product","3":"status-publish","4":"has-post-thumbnail","6":"product_cat-all","7":"product_cat-society","9":"first","10":"instock","11":"shipping-taxable","12":"product-type-simple"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>If a medicine is too expensive, should a hospital make its own? 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